Arizona Nonprofit Launches First-Ever Electric Vehicle Fundraiser Featuring the Iconic Volkswagen ID. BuzzFamily-focused campaign combines innovation, practicality, and purpose to help fund clinical trials for childhood blindness
Arizona Nonprofit Launches "Ultimate Road Trip" Fundraiser Inspiring Families to Make Memories While Funding Childhood Blindness ResearchWinner will receive a 2026 Thor Axis motorhome, a Ford Bronco Badlands, and $50,000 cash in one of the charity's largest travel adventure prize packages ever.
Nonprofit Launches One of the Nation’s Most Comprehensive Education Resources for Inherited Retinal DiseasesFree platform empowers patients and families with information on 53 diseases, 125 genes, active clinical trials, treatment pipelines, and support resources
Arizona Nonprofit Launches "Second Chance" Fundraiser for Custom Lexus LX 700h Overtrail to Benefit Childhood Blindness ResearchLimited-time campaign gives supporters one final opportunity to win a custom luxury SUV while helping fund clinical trials for inherited retinal diseases.
Arizona Nonprofit Launches “America 250” Fundraiser Featuring 250 Winners to Support Childhood Blindness ResearchA Race Against Blindness celebrates America’s 250th anniversary with a major fundraising campaign featuring vehicles, cash prizes, and a life-changing impact for children facing blindness
A Race Against Blindness Announces Spring 2026 Luxury Vehicle Fundraiser in Partnership with Foundation Fighting Blindness to Advance Pediatric Inherited Retinal Disease ResearchSCOTTSDALE, Ariz., March 16, 2026 (GLOBE NEWSWIRE) -- A Race Against Blindness (RAB) today announced the launch of its Spring 2026 national fundraiser, Two Winners, One Drive for Vision Research, in strategic partnership with the Foundation Fighting Blindness. The campaign will run from March through June 2026 and will directly support research focused on pediatric inherited retinal diseases, including retinitis pigmentosa (RP) and Bardet-Biedl syndrome (BBS).
A Race Against Blindness Awards Additional $1 Million Grant to Advance Clinical Trial for Sight-Saving Gene Therapy for Bardet-Biedl Syndrome 1 (BBS1)PHOENIX, Sept. 04, 2025 (GLOBE NEWSWIRE) -- A Race Against Blindness, the Arizona-based 501(c)(3) nonprofit founded by Dr. Stephen Johnston and Kristina Johnston, announced today that it has awarded a new $1.0 million grant to Axovia Therapeutics to support the clinical development of AXV-101, an investigational gene therapy aimed at combating childhood blindness due to retinitis pigmentosa (RP) caused by Bardet-Biedl Syndrome 1 (BBS1).
A Race Against Blindness Announces $2 Million Grant to Support Sight-Saving Clinical TrialPHOENIX, Feb. 05, 2025 (GLOBE NEWSWIRE) -- A Race Against Blindness, a nonprofit organization dedicated to funding sight-saving therapies for children, is thrilled to announce a $2.0 million grant was awarded in December 2024 to Axovia Therapeutics to support a planned clinical trial for the company’s product candidate, AXV101, aimed at combating childhood blindness due to retinitis pigmentosa (RP) caused by Bardet-Biedl Syndrome 1 (BBS1).
A Race Against Blindness Grants $1 Million Supporting Axovia Therapeutics’ Planned Clinical Trial for Bardet-Biedl Syndrome (BBS)PHOENIX, Oct. 30, 2024 (GLOBE NEWSWIRE) -- A Race Against Blindness, a nonprofit organization dedicated to funding sight-saving research for children, is pleased to announce a $1 million grant to Axovia Therapeutics to support the company’s lead program, AXV-101. This marks an important step toward developing a treatment to address blindness and obesity associated with Bardet-Biedl Syndrome 1 (BBS1), a rare genetic disorder with no current curative options.
A Family’s Race To Treat Childhood Blindness: A Race Against Blindness Grants $1 Million to Bardet-Biedl Syndrome ResearchAn Arizona Family’s Inspirational Journey Highlighted as Donors Across America Come Together to Fund the Advancement of Potential Life-Changing Therapeutic, Offering Hope to the BBS Community and Families
